A primary mission of the
Sarcoidosis Network Foundation is to educate and provide support
for sarcoidosis patients, their families, and caregivers.
If you are a newly diagnosed sarcoidosis patient, you may be a
bit overwhelmed by what it means to have a disease which has no
cure. While there is no cure known at present, there is treatment
available, and support is available too. Perhaps you have wondered
how sarcoidosis is going to affect your life, what to expect from
the treatment available, and how to deal with having sarcoidosis..
Were you surprised that your family doctor didn't seem to be very
knowledgeable about sarcoidosis? Have you looked at the list of
known side effects of treatment in dismay? Have you wondered what
"treatment, but no cure" actually means for you? Have
you wished that you could talk with other patients to see how they
have coped with sarcoidosis, what changes it has made in their lives?
Many of us feel that we have greatly benefited from meeting and
talking with other patients and their families. We feel less anxious
to learn that other patients have experienced some of these same
things, but, have discovered that some fears prove groundless, that
there is life after diagnosis, and that there are ways to cope with
some of the irritating problems or concerns that we have encountered.
Would you like to meet others, learn their experiences with doctors,
family, employers, disability, feel mutual support and see how to
cope? Would you like to know if other patients have had this or
that symptom, or what some treatment was like?
We would like to make reaching and finding others easier for you,
and we would like to hear from you too. Besides the link to our
Facebook page, to the upper right, we have monthly meetings, conferences
and recreational activities in which you are very welcome to participate.
Hearing the personal stories of others is one of the best ways to
see how your experiences and feelings are valid, real, and shared
by others. Would you be willing to share your experiences with us?
We would like to hear "your story"; would you be willing
to share it with others? Do you keep a blog or journal that you
would like to share?
If you would be willing to let us share you some of your experiences
with others, please contact us at:
11428 East Artesia Blvd, Suite #10
Artesia, CA 90701
or, use the "Webmaster" link at the bottom of the page.
Yes, I too am a sarcoidosis patient.