A number of research projects
are underway seeking to learn more about Sarcoidosis and a possible
cure. Other research evaluates better treatments for the disease
among both new and already-known drugs.
As yet no cure has been discovered.
We need more Research
What can I do to help?
Many patients and their families ask us this question. We are also
asked repeatedly for information about treatments, symptoms and
"what to expect in my newly diagnosed case".
Another organization seeking collect and share information about
the experience of sarcoidosis, Cure
Together, operates an online survey and statistics service
for over 500 medical conditions, including sarcoidosis. If you are
a patient, we encourage you to go to their site and complete the
anonymous survey of your experience and symptoms. This data will
help both research and other patients.
You can learn more about Cure Together's
ongoing mission and partners here
What is the prospect for more research?
Technology has enabled more research by making more data and more
cost effective ways to cover the cost of research available. Although
the cost investigational research has reached dismayingly large
levels, there remains hope this may be helped by a new field of
translational bioinformatics. Dr. Atul Butte gave an NAS sponsored
lecture on his work in this field, and his inspiring discussion
on this may be viewed on YouTube.